In Dec 2022 our beautiful and brave daughter, Bethany passed away after a brief hospital stay. She was just 19 years old. Beth was born with a very rare genetic life limiting disorder - at the time of her diagnosis there were only 35 girls worldwide who had the same condition. Her condition meant she needed 24/7 care; she was unable to walk, talk or feed herself and her condition or complications of it, resulted in regular periods in hospital. Anyone who has ever looked after a sick or elderly relative will know how important it is take time out for yourself and your family which is where Ellenor stepped in to help me and my family. They are an adult hospice located in Kent who care for patients at end of life or with life limiting conditions by providing support to families, children, carers and even those who have not been referred to Ellenor. When Beth turned 18, she was able to access this amazing facility providing 24/7 residential care to allow me and my husband Steve and our two other daughters, Keira and Grace time to do normal things as a family; the kind of things others would take for granted. To say their service was a life line to us is an understatement particularly after the preceding two year Covid period. To help raise donations for this wonderful facility, my family and I along with my close colleagues within LRM, who have supported us through the most challenging of times, are walking the Bridges of London - a total of 11km, and I would be very grateful for any support you could offer. The charity receives very little financial support from government so no little is too small as your money will help keep this charity running to enable them to continue to provide care and support to other families during tough times.